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Adult Refsum's disease

About this site

This site was funded by the European Union as part of the Refsum's Disease, Diagnosis, Prognosis and Treatment (RDDPT) project. It gives advice and information about adult Refsum's disease, based on the findings of the project, aiming to provide the clearest and most up-to-date information both for patients and for clinicians. The authors of the material for this site include both project participants and other experts.

There is no budget for an ongoing information service to go with this site. We hope that the information given here, along with professional support from specialist centres, and the mutual support of the online support network, will provide the help you need.

If you want to give feedback on how the site itself could be improved, or to tell us about any missing or inaccurate information, click here to email.

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Page last updated 26 June 2006