Information for patients, their families and helpers
Diet as a treatment for adult Refsum's disease
This section of the website looks in detail at how you can use diet as part of your treatment for adult Refsum's disease, starting by asking why diet is important for Refsum's disease patients.
It looks at what phytanic acid and phytol mean to adult Refsum's disease patients, how to choose a diet which protects against the symptoms of adult Refsum's disease (looking at different levels of risk in different foods, and which foods to eat), and gives specific information about cheese alternatives, eating out and convenience foods, the importance of taking extra care when you are ill, and the possible danger from lanolin in skin cream. For those who would like to look at phytanic acid levels in their diet in more detail, it also introduces the phytanic acid calculator.
Next: Why diet is important
Page last updated 26 June 2006